Play Live Radio
Next Up:
0:00
0:00
0:00 0:00
Available On Air Stations

SWFL nonprofit helps plan post-hurricane needs for autism families

iStock, NOAA

When a storm hits, families with a member with ASD have even more hurdles to clear than others. A survey helped a Lee County advocacy group develop priorities.

The biggest immediate need for an autism family after a hurricane is clean clothes. Families might have suspected that, but an organization that works with autism families, called Family Initiative, knows it for sure.

Organization co-founder and president David Brown said they recently conducted a survey of local autism families:

“Access to clean laundry was the No. 1 thing. Fifty-seven percent of the families said that to us, that that would be their No. 1 priority,” said Brown. “And the No. 2 thing, which I'm sure is not a surprise to anybody, was access to Wi-Fi.”

Autism spectrum disorder, or ASD, affects 1 in 36 children in the U.S., according to advocacy group Autism Speaks.

By raising awareness of the needs, Family Initiative hopes to lower the strain for ASD families.

Amber Zollinger, a parent and Family Initiative board member, described some of the added stress that comes up after a storm when the power is out.

“You’re trying to regulate yourself, so that you can regulate your child, and everyone’s miserable,” she said.

The survey did produce benefits. Brown said that in coming months, Family Initiative will help to train staff at all Lee County hurricane shelters to better accommodate people with autism.

“So every single staff person that would potentially man a shelter in Lee County will go through basic training about autism and have an awareness about that, which, you know, I think to the families we serve is just like a phenomenal outcome,” he said.

Familiy Initiative provides family-centered support, programs and evidence-based therapies to children, teens and young adults affected by ASD in Southwest Florida.


Copyright 2024 WGCU

Cary Barbor is the local host of All Things Considered and a reporter for WGCU. She was a producer for Martha Stewart Radio on Sirius XM, where she hosted a live interview show with authors of new books called Books and Authors. She was a producer for The Leonard Lopate Show, a live, daily show that covered arts, culture, politics, and food on New York City’s public radio station WNYC. She also worked as a producer on Studio 360, a weekly culture magazine; and The Sunday Long Read, a show that features in-depth conversations with journalists and other writers. She has filed stories for The Pulse and Here & Now. In addition to radio, she has a career writing for magazines, including Salon, Teen Vogue, New York, Health, and More. She has published short stories and personal essays and is always working on a novel. She was a Knight Journalism Fellow, where she studied health reporting at the Centers for Disease Control and Prevention in Atlanta and followed epidemiologists around Kenya and Alaska. She has a B.A. in English from Lafayette College and an M.A. in Literature from the University of Massachusetts.