Genetic research

Camden Alderman, 21, who has a rare disease called Wiskott-Aldrich syndrome, holds with an infusion pump he uses near his home in Greensboro, N.C., Wednesday, June 12, 2024. When he was a toddler, doctors removed his spleen because of uncontrolled bleeding. As a young boy, he wound up in the hospital many times and was told he couldn’t play baseball.

Gene therapy may cure rare diseases. But drugmakers lack incentives, leaving families desperate

Associated Press

About 350 million people suffer from rare diseases, most of which are genetic. But the individual disorders affect relatively few people, so there’s little commercial incentive to bring these treatments to market.

Biophysicist He Jiankui addressed the last international summit on human genome editing in Hong Kong in 2018. His experiments in altering the genetic makeup of human embryos was widely condemned by scientists and ethicists at the time, and still casts a long shadow over this week's summit in London.

NPR Health

Experts weigh medical advances in gene-editing with ethical dilemmas

Rob Stein

The last time this summit convened in 2018, the world was shocked to hear a scientist had created the first gene-edited babies. He was condemned, but gene-editing has continued, with some success.

Leon County Judge John Cooper on June 30, 2022, in a screen grab from The Florida Channel.

Health News Florida

Genetic Research Institute Opens in Fort Myers

John Davis

A non-profit research center in Fort Myers is joining the rapidly developing field of genetic research. The Clinical & Translational Genome Research...