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Toddler with Rare Bone Disease Survives

FLToddler.jpg
Daniel Wallace
/
The Florida Channel
Leon County Judge John Cooper on June 30, 2022, in a screen grab from The Florida Channel.

 A St. Petersburg couple who lost two sons to a genetic bone disease called Jeune syndrome and expected to lose their third now have brought him home after 8 ½ months at Children's Hospital of Philadelphia. There, he underwent pioneering surgery to implant metal rib separators that have enabled his lungs to grow, giving him a shot at living to adulthood, the Tampa Bay Times reports. 

Originally founded in December 2006 as an independent grassroots publication dedicated to coverage of health issues in Florida, Health News Florida was acquired by WUSF Public Media in September 2012.