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A Celebration of Every Moment

John Pendygraft
The Florida Channel
Leon County Judge John Cooper on June 30, 2022, in a screen grab from The Florida Channel.

Two-year-old Savannah Hurst’s parents know that any day can be her last. The little girl has metachromatic leukodystrophy, a rare genetic disease with no cure, and she will likely die before she turns 3. As the Tampa Bay Times reports, her family is trying to cram a full life for her into just a few months’ time. 

Originally founded in December 2006 as an independent grassroots publication dedicated to coverage of health issues in Florida, Health News Florida was acquired by WUSF Public Media in September 2012.