Two-year-old Savannah Hurst’s parents know that any day can be her last. The little girl has metachromatic leukodystrophy, a rare genetic disease with no cure, and she will likely die before she turns 3. As the Tampa Bay Times reports, her family is trying to cram a full life for her into just a few months’ time.
A Celebration of Every Moment
John Pendygraft
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The Florida Channel