Two-year-old Savannah Hurst’s parents know that any day can be her last. The little girl has metachromatic leukodystrophy, a rare genetic disease with no cure, and she will likely die before she turns 3. As the Tampa Bay Times reports, her family is trying to cram a full life for her into just a few months’ time.
A Celebration of Every Moment
![Leon County Judge John Cooper on June 30, 2022, in a screen grab from The Florida Channel.](https://npr.brightspotcdn.com/dims4/default/c9f442d/2147483647/strip/true/crop/746x495+0+0/resize/880x584!/quality/90/?url=http%3A%2F%2Fnpr-brightspot.s3.amazonaws.com%2Flegacy%2Fsites%2Fhealthnewsfl%2Ffiles%2F201305%2FSavannah_Hurst.jpg)
John Pendygraft
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The Florida Channel