Discreetly Tracking Down Sex Partners To Stop A Surge In STDs

Sep 8, 2018
Originally published on September 8, 2018 10:50 am

The U.S. is in the middle of a steep and sustained increase in sexually transmitted diseases.

So how are public health officials responding?

In northwest Oregon's Clackamas County, health officials have decided to ask anyone who comes in with an STD who their sexual partners are — and then track those partners down.

That job falls to two women: registered nurse Mary Horman, and disease intervention specialist Liz Baca. They do most of the work over the phone, telling people they've had a partner (no name is revealed) who has tested positive for gonorrhea, HIV, chlamydia or syphilis.

It's a difficult conversation. And many people can't be reached via phone. So about once a week, Horman and Baca jump into a car and start knocking on doors.

"It can definitely be scary at times," Baca says, "especially those rural areas where you're really relying on the GPS to get you there, and sometimes there are roads that lead you to nowhere." So far, they haven't gotten lost.

Plenty of residents in the county's outskirts own firearms, Baca says, and are comfortable displaying them if they feel they need to protect their property.

"I always try to make myself visible and not be fidgety," she says. Baca tries to make her approach as warm as possible, and says, " 'I have a nurse with me.' Or, 'My name is Liz, and I work for Clackamas County.' "

The two always travel as a pair, and never enter a home, she says. And they always carry a cell phone to keep the home office informed of their whereabouts.

On the afternoon I catch up with them, Horman and Baca already have been challenged by a dog and had to leave a trailer park empty-handed. They had the right spot, but didn't know which door to knock on. And they couldn't just ask around, because neighbors might guess why the health department is tracking someone down, and that would be a breach of medical privacy.

They next call on a 64-year-old laborer, who we're just identifying as Larry for those same privacy reasons. He agrees to talk with them, in hopes of warning other people about the substantial risks of syphilis.

Baca and Horman tell him how some diseases, like syphilis, are "reportable" — meaning that as soon as Larry was diagnosed, the doctor had to inform the county, which is why they're at his door.

Larry tells them he's already had penicillin delivered intravenously, and he's healing fine.

The conversation gets tougher as Baca tries to understand the extent of Larry's infection by showing him graphic pictures of sores and rashes.

"So, another symptom of secondary syphilis is the loss of hair," she explains. "So, you suddenly lose some hair. You're thinking, 'What's going on?' In a couple of weeks it resolves. And you're still infected. So do you recall any of these symptoms?"

"I do," Larry smiles. "And I would probably say that the lesion, I think you called it, I think occurred — it was probably about 10 years ago."

That means Larry was living with syphilis for at least a decade — without knowing it.

Many people have syphilis are asymptomatic — meaning they are carriers of the bacteria, but show no obvious symptoms. And that makes the infection tougher to fight.

Also, the fact that the disease was, for a time, nearly eradicated in much of the United States, means some younger doctors don't readily recognize the symptoms and signs.

Larry explains that he used to have sex with multiple partners he found on Craigslist. But he can't remember any names.

Baca is crestfallen. After such a long time, it's too late to track down those people.

Still, she insists her time wasn't wasted.

"Being out in the field, you find individuals and you get that public health intervention that is crucial," she says.

David Harvey, the executive director of the National Coalition of STD Directors, agrees that the efforts of fieldworkers like Baca and Horman are vital.

"Disease intervention specialists are doing heroic work," he says. "They're helping to navigate and get people into care."

Twenty years ago, Harvey says, there were as many as 4,000 disease intervention specialists like Baca in the U.S. Now, because of public health costs, the number is down to about 1,400.

Baca says she'll continue the work, prioritizing high risk populations — like men who have sex with men and pregnant women.

The public health officer for Clackamas County, Dr. Sarah Present, says syphilis in newborns can cause serious neurological complications and even death.

"We have now multiple cases of congenital syphilis in our county — just in this year," Present points out, "whereas that had been fairly unheard of for at least the last decade, if not more."

Partly because of that surge in syphilis among babies, Clackamas is now dedicating more resources to aggressively tracking down partners and encouraging testing, Present says — even if those notifications might lead to family strife.

"We do our absolute best to have the [first person diagnosed] talk to their partners for us," says Present. "We don't want to have to be the bad guys. However, we can be a partner for people who have the infections — and help them figure out the best way to control the spread of the disease further."

A study released by Clackamas County earlier this summer shows rates of syphilis have increased 1300 percent over eight years — in part because the numbers involved used to be so small.

"Within the last year we have seen our numbers dramatically increase to the point I'm quite concerned about it," Present says.

And Clackamas is no outlier. A new report from the Centers for Disease Control and Prevention finds that over the last several years, the number of gonorrhea cases has increased 67 percent, and syphilis cases are up 76 percent.

The director of the CDC's national center for STDs, Dr. Jonathan Mermin, says the nation is sliding backward.

"It is evident the systems that identify, treat, and ultimately prevent STDs are strained to the near-breaking point," he says.

Scientists say there are many reasons for the national increase — from the rise in antibiotic-resistant bacteria, to the ease of finding anonymous sex in an era of cellphone hook-up apps.

Public health departments in the United States have substantial powers. In their effort to prevent the spread of disease, they are allowed to inspect, treat and quarantine anyone — even without consent.

That power originates in English common law, which finds the rights of an individual can be limited for the common good.

The most famous example is perhaps the Long Island cook, Mary Mallon, better known as Typhoid Mary. She was an asymptomatic carrier — and transmitter — of typhoid in the early 1900s, and was forcibly isolated for years by New York public health officials.

Nobody's advocating such draconian measures now, especially for sexually transmitted diseases.

But public health departments can exercise significant power over certain infectious diseases (such as drug-resistant tuberculosis) that are more broadly contagious because they are airborne.

Clackamas County and the two other counties that make up the Portland metro area, have received substantial state and federal grants to help pay for its extra public health outreach.

They are taking several steps to stop the transmission of STDs — like strengthening prevention activities, enhancing screening, testing high-risk populations and educating the public. The counties are also trying to better support people who test positive; expand investigations; and unite community leaders on this important issue.

As Baca and Harmon visit with Larry on his front porch, the man thinks back to when he first realized he was very sick. Once he found out why his health was failing, he says, he started to take the infection seriously. "Because, really truly, for me," he says, "it was going to be a matter of life and death."

Baca and Horman say getting the chance to save lives is why they do this work, even if it's uncomfortable sometimes.

A few minutes later, the women climb back into the car they'd left parked in a spot where getting away would be easy — just in case Larry wasn't so accommodating. They check their map and the next name on their list.

"There are those areas where you're entering a property and there's no one in sight," Baca says, "and dogs can be scary. You have to run very fast if you see them."

This story is part of NPR's reporting partnership with Oregon Public Broadcasting and Kaiser Health News, which is an independent journalism organization and not affiliated with Kaiser Permanente.

Copyright 2018 Oregon Public Broadcasting. To see more, visit Oregon Public Broadcasting.

SCOTT SIMON, HOST:

Over the last five years, the United States has seen a steep increase in sexually transmitted diseases - 2.3 million Americans now have some form of STD. One county in Oregon is asking people diagnosed with the more serious forms to identify their partners so they can be contacted and treated. Kristian Foden-Vencil of Oregon Public Broadcasting spent an afternoon driving the foothills of Mt. Hood with two health workers whose job is to find those partners and deliver the tough news.

KRISTIAN FODEN-VENCIL, BYLINE: Mary Horman is a nurse and Liz Baca a disease intervention specialist. Both are with Clackamas County. Most of the work is done over the phone, informing people they've had a partner who's tested positive for gonorrhea or syphilis. It's a difficult conversation, even on the phone. But often, they can't reach the person. And Baca says that's when they have to hunt down the address, drive to the house and deliver the news face to face.

LIZ BACA: It can definitely be scary at times, especially those rural areas where you're really relying on the GPS to get you there. And, sometimes, there are roads that lead you to nowhere, and we have gotten lost.

FODEN-VENCIL: OK. Where are we going?

BACA: We are in Aurora, and we are visiting a resident that was diagnosed with neurological syphilis.

FODEN-VENCIL: A new report from the Centers for Disease Control and Prevention finds that, over the last five years, the number of syphilis cases in the U.S. has increased 76 percent. Gonorrhea cases are up 67 percent. Scientists say there are many reasons for the increases, from antibiotic-resistant bacteria to the ease of finding anonymous sex in an era of cellphone hookup apps. So far this afternoon, Baca and Horman have been challenged by a dog and had to leave a trailer park empty-handed. They were in the right spot but didn't know which door to knock on. And they couldn't just ask around because that would be a breach of medical confidentiality. Their next call is a 64-year-old handyman, who we're just identifying as Larry for those same privacy reasons.

BACA: Hi. Larry?

MARY HORMAN: Hi.

LARRY: Liz?

BACA: Yes, it's me. How are you?

FODEN-VENCIL: This call is unusual because, actually, Larry's already seen a doctor and undergone a course of penicillin, so he's expecting this follow-up visit. But Baca wants to know about his partners and understand the extent of his infection. So she shows him a book with graphic pictures of various skin conditions.

BACA: So do you recall any of these symptoms in the last several years? Do you...

LARRY: I do.

BACA: You do. OK.

LARRY: And I would probably say that the - a lesion, I think you called it...

BACA: A lesion, yes.

LARRY: ...I think occurred probably - like I'm saying I think it was probably about 10 years ago.

FODEN-VENCIL: So Larry's been living with syphilis for at least a decade without knowing it. Many sufferers can carry the disease but show no obvious symptoms, and that makes syphilis tougher to fight. Also the fact that the disease was almost eradicated means some younger doctors don't recognize it. Larry says he used to have sex with multiple partners from Craigslist and can't remember names. Baca is crestfallen. Without names and after such a long time, it's too late to find anyone. But David Harvey, the head of the National Coalition of STD Directors, says her time wasn't wasted.

DAVID HARVEY: Almost universally, people appreciate having this information shared in a confidential way...

FODEN-VENCIL: And he says it all but guarantees people get treatment.

HARVEY: ...And it breaks the cycle of infection.

FODEN-VENCIL: And the head of public health in Clackamas County, Dr. Sarah Present, says tracking down partners is important, even if it leads to family strife.

SARAH PRESENT: We do our absolute best to have the initial case talk to their partners for us. We don't want to have to be the bad guys.

FODEN-VENCIL: Baca and Horman climb back in their car, which is pointed away from Larry's just in case they need to make a quick getaway. Baca says she loves the job but follows a few basic rules - be friendly and visible, not fidgety because plenty of people out there have firearms and never enter a home. With that, the two public health workers head off to knock on another door.

For NPR News, I'm Kristian Foden-Vencil in Clackamas County, Ore. Transcript provided by NPR, Copyright NPR.